More about Vitiligo/lupus (merged)

rsw22

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There is this article about Michael's vitiligo which spells out further what he had to deal with from an early time.

It's something Quincy should read because Lupus causes inflamations even on the lungs, so when Michael was telling Quincy that he has spots on the lungs (possibly seen from scans by the dermatologist) he was being truthful, but Quincy was too ignorant or big-headed to listen, so Michael just ignored him

Actress: Michael Jackson's glove was to hide skin problem
9 July 2009
 
By Doug Gross
CNN
(CNN) -- Michael Jackson's single white glove was his trademark -- an iconic image for a performer whose career constantly set, then redefined, pop culture trends.
Michael Jackson's single glove, a trademark image, started as a way to hide his skin condition, friends say
But it also was an early effort to mask a skin condition that he would struggle with for the rest of his life, say some who were close to him.
Actress Cicely Tyson, a friend of Jackson's, said the two shared a fashion designer in the 1980s.
"All of a sudden, he said, 'I'm doing this glove for Michael,' " she said. "Michael was beginning to develop the vitiligo and it started on his hand.
"The glove was to cover the vitiligo; that's how that glove came into being."
The glove design and reason for it were not just hearsay for Tyson, she said.
"I was there when he was creating it," she told CNN's Don Lemon.
More than the black fedora, the white socks and loafers or the red leather jacket, the solitary glove -- made famous in the music video for "Billie Jean" -- became a Jackson trademark. He was dubbed "The Gloved One," by media and a sequined glove he wore during his 1984 Victory tour was expected to fetch more than $60,000 in an upcoming auction, even before his death.
Jackson's dermatologist, Dr. Arnie Klein, told CNN that Jackson suffered from vitiligo, a disease that causes blotches of lightening skin, as well as a form of lupus that led to rashes and flaking of skin on his scalp.

"His was bad because he began to get a speckled look over his body," Klein said. "All over his body -- but on his face and hands, which is hard to treat."
It's a report that rings true to others with the disease.
"I have to wear sleeves and carry an umbrella," said Lee Thomas, who wrote a memoir called "Turning White," which discusses his physical and mental struggles as an African-American man whose skin changes because of vitiligo. "It totally makes sense to me."
Thomas, an Emmy-winning television journalist in Detroit, Michigan, told CNN that he shares a habit with Jackson.
"I got [white spots] on one of my hands, so I used to wear a glove to hold a microphone," he said.
Dr. James Norlund, a dermatologist, never treated Jackson, but said the singer's use of the gloves and lipstick was consistent with the patterns of vitiligo, since the spots frequently first appear on the hands and face, including the lips.
Klein said he treated Jackson's vitiligo with a cream that eventually bleached Jackson's darker pigmentation to even out his skin color. He said it was that treatment -- not a once-rumored desire by Jackson to be white -- that lightened his skin over the years.
"Michael was black," Klein said. "He was very proud of his black heritage."
Regardless of its origins, the glove was never viewed as anything other than fashion by Jackson's fans, some of whom donned gloves to impersonate him.
At Jackson's memorial service Tuesday, actress Brooke Shields, a close friend of Jackson's, remembered the glove in a light moment during an otherwise emotional eulogy.
"When he started wearing the glove, I was like, 'What's up with the glove?' " she said, drawing laughter from the crowd. "I was like, 'If you're going to hold my hand, it better be the nonglove one because sequins really hurt me.' It would dig in.
"He'd just shake his head and he would just smile."


http://www.cnn.com/2009/SHOWBIZ/07/09/michael.jackson.glove/index.html


This talks about what Quincy misunderstood when Michael mentioned spots on his lungs

Causes of Lung Involvement[SIZE=+0]

Microscopic examination of the patient's affected lung has shown a variety of changes including bleeding, inflammation and congestion. Thickening of the lung wall and damage to the blood vessels is also seen. It is thought that these problems are brought about by deposition of complexes which are formed when the body launches an immune attack against itself. Why these complexes should be deposited in the lungs (or anywhere else for that matter) is largely unknown, Types of lung involvement in lupus can be divided up as shown below. A brief description of each is included in brackets. Lupus commonly affects the lungs and has been reported in half of all patients with lupus. Its seriousness varies from the very worrying to the totally and wholly asymptomatic, not requiring any treatment at all. It is, in general, picked up by symptoms of lung involvement (chest pain), shortness of breath, coughing up blood, or by evidence of lung involvement on clinical examination and sometimes by special tests. Diagnosis may be simple or difficult depending on the type of underlying lung involvement.

http://www.lupus-support.org.uk/Lung.htm
[/SIZE]

So when Michael explains to Quincy, his unwillingness to listen and learn what he doesn't know, leads him to associate Michael with druggies and say "I have heard all that stuff"

I would love to see Quincy enlightened of his ignorance. That would be a sight to behold.
 
Re: More about Vitiligo and response to........

Slanderer Jones isn't interested in the truth. The guy is that damn arrogant. The truth is humbling and he won't be humbled.
 
Re: More about Vitiligo and response to........

Is it possible to send it to Quincy? Maybe someone should.
 
Re: More about Vitiligo and response to........

See, this is why I am waiting for the toxocology reports to come out before I believe anything coming from the media. The media does not want to know the truth about Michael. Michael was a sick man and I believe this is why we had not seen him performing much in the last 10 or 12 years of his life. This is also why I believe that Michael could have been a stressed about this tour when Phillips told him that it would be 50 instead of 10. This was just too much for him.

But the media doesn't want to know about Michael's sicknesses. All they want to do is continue to portray him as a seasoned drug addict. But I just don't believe that is what Michael was. Michael was sick.
 
Re: More about Vitiligo and response to........

he was sick, but he did pass the phyisical.....cofusion still reigns supreme


The thing with lupus is that it's a condition that can be contained with medication to combat inflamation.

If you see the photo on this site http://www.michaelandvitiligo.com/

you will see that Michael's hands are red from inflamation.

When he had his medical, definitely lupus was not active because he was taking medication and he must have filled in questionnaires about any conditions which included vitiligo and lupus.

The doctor assessed and decided they don't hamper his capacity to perform, since he has medication for it.

The problem becomes if lupus is impacted by something else that suddenly kicks in, what does Michael then do?

It's best to wait for the toxicology because another question will be, what was making Michael feel unwell in order to call Frank? and then necessitate medication?

The unfortunate thing is that 6 weeks creates time for tabloids to conjure up all sorts of stories.
 
Lupus!

Sorry if there is alraedy a thread for this...but this article really made me think!


What are the Symptoms of Lupus?
First off, lupus is not rare. But we definitely need a spokesperson. We need someone famous to take on lupus as their cause.
The problem with lupus is, people can't tell how sick you really are. That's one of the reasons lupus doesn't get the respect it deserves. When my patients apply for disability, often they are turned down. One of the major things that happens in lupus is chronic fatigue, and there is no way to measure that.
Looking at the malar rash in lupus, how does a doctor know it isn't the worst acne? Because it spares the areas around the nose and under the nose that are shaded from ultraviolet light.
How do you know if it's lupus or another form of arthritis? Well, hopefully with diagnostic tests. In addition, the arthritis of lupus is not deforming. The ligaments and tendons around the joints loosen, but there is not permanent destruction of the bones.
Memory problems bother patients on a day-to-day basis. This is a huge problem, and we don't know why. In lupus patients, we are often overlooking fibromyalgia. Thirty percent of my patients have fibromyalgia. You are tired, you hurt, and nothing your doctor does helps. Fibromyalgia is not inflammatory. It is a resetting of the pain thermostat in the brain. I suspect it has more of an impact on your day-to-day life than your lupus, if your lupus is not flaring.
Another symptom is hair loss, called alopecia. In the discoid form of lupus, hair loss will be permanent. I have patients, 15 or 16, who will have to wear wigs the rest of their lives because their diagnosis was delayed and they already had permanent hair loss.
Did you know that one out of five women have a positive anti-nuclear antibody test? Having anti-nuclear antibody is very common, but the great majority of people will never get sick. This is why the diagnosis of lupus is not just based on the positive ANA test. Something else has to happen to prove the person really has lupus, like the skin rashes, the joint inflammation, the kidney disease, and the low blood counts.
 
Re: More about Vitiligo and response to........

Thank you. Incredibly informative. I knew the glove bit, but now I have more fuel to add to the fire when someone mentions the skin issue.
 
Re: More about Vitiligo and response to........

lupus is difficult to deal with. My mother has it for years now and is always in pain from it, also causes inflammation all over the body, hair loss, skin problems, immunity problems, heart attacks (through inflammation). She is definitely addicted to pain meds now.

I read michael had lupus for a while, lupus + vitiligo. Lots of things raise the risk for these and make them worse. A few being vitamin D deficiency (lack of sun exposure), drug induced (antibiotics), stress (long term), bad diet.

Lupus can be controlled somewhat, but flare ups still happen, and medications don't awlays totally rid person of pain with the disease.
 
Re: More about Vitiligo and response to........

Damn, I feel so sad just thinking about what Michael had to go through. :(
 
Re: Lupus!

I suffered a form of Lupus that caused me acute renal failure 6 years ago. Now I am a home periteneal diaysis patient of a year and a half from my chronic kidney disease as a result. I am awaiting a kidney transplant in Chicago.

I have been a lifelong Michael Jackson fan. Despite wanting to believe that Michael was healthy and happy, I did all along sense a connection with some of his accentricities that pointed to potential Lupus and vitiligo, at least some form of an auto-immune disorder.

Like Mike I am recommended to wear surgical masks for protection, especially when dialyzing. Once I have my kidney transplant that will be regular practice for a while, especially publicly.

I normally don't wear the masks publicly because people laugh at me thinking I am just being a fool or imitaing MJ, except in the privacy of my own home with curtains closed. I also have an IV pole for manual dialysis exchanges when I am not using the automatic cycler machine.

I am not stating that Michael suffered kidney disease or dialysis, but I am sure just like the single glove was originated to conceal his vitiligo yet becoming his trademark style, I assujme the face masks did have medical signifigance even though they inevitably became a staple of his character's identity.

I know that MJs medical is personal, but it is now going to come out eventually it seems. I just hope that we are understanding of all the pain and suffering Michael endurred struggling with these conditions and especially hiding it so that we weren't consumed with anything but the illusion of a healthier idol.

I love Michael Jackson regardless what medical conditions he might have had. It humanizes what was once a mystery. That mystique is what also caused the haters to not identify with him. I wish Michael would had known our love was unconditional, but then again I know that's not true for all. My neice said "Yuck" the other day when Dr. Arnold Klein stated om Larry King Live that Michael lost a signifigannt amount of hair over the years. I was so offended, because like I told her... that could be me someday and should I be embarrassed?

I feel so much more love for Michael Jackson just hearing more details about his Lupus and Vitiligo.
 
Re: Lupus!

Oh the reason I mentioned my IV pole is bc according to news reports MJ traveled with a mini clinic on the HIStory Tour in 1996 which included an IV pole. My point is we don't know why he needed that and maybe he did need it. That is no reason to judge someone for unconventional use.
 
Re: Lupus!

Wow, Sean, I have acute kidney disease also and am on dialysis. I was on Peritoneal dialysis for about a year but then I got an infection and I had to stop because they couldn't put in another catheter because of all the scar tissue caused by the antibiotics. I too have an IV pole in my room from my home treatments. I just haven't figured out what to do with it now that I don't need it anymore. I guess if you have something in common with MJ, you don't find it all that strange. I am finding it kind of strange that so many of his fans also have IV poles in their homes. :mello:

I just wish Michael would have been more honest with us as to his health. I know it is a personal thing and he wasn't looking for any sympathy but when I think of what pain he must have been going through, the mental anguish and the fact that he was doing it practically alone, I break down and cry every time and my heart breaks for him. I wish I could have been there for him to hold him in my arms and just rock him to sleep when he had insomnia.:better:
 
Re: Lupus!

Sean, wow, thank you and My heart goes out to you. My uncle has Vitiligo and his wife had Lupus and Brest cancer. Well it was very traumatizing. The Media is talking about Michael's needing a doctor @ his concert as a drug addiction. They don't know the full story AT ALL!!! They all said he bleached his skin EVEN After he came out and told the world that he had vitiligo. And now when they found out about the lupus from his dermatologist, I don't know what they're gonna do or say.

But What ever it is, My Love for Michael Will NEVER Shake. He was human and what he suffered is so great that we cant even imagen it. I just feel so sorry that even after his passing, They still want to degrade him. I feel ashamed of all the people in the Media. They judge him with out Knowing ANYTHING Whats so ever about him.

I now know that he has suffered sooo much alone, His children was all he had. I thought I knew Michael, We all did. But there are things that we don't and what ever it is, when ever it comes out, its gonna make me love him more because He was real, he was one of us. He had connections with all of us.

It hurts and Upsets me when i turn on the TV and NEWS channel comes on. They talk about him as the did when he was alive. I Hope The public understands and like you said Sean, And love him so much more because He was the Best human that Ever lived.

Thank you Sean, and God be with you!

~RIP My Angel~I Love You Most~
 
THX for sharing, Sean and Jacksonologist, I feel for you.
I always wondered what was up with the surgical masks, thx for explaining.
 
Wow, so it's sounding like he really may have had lupus in addition to the vitiligo. God, autoimmune diseases suck. Suck, suck, suck.

I'm with the few other folks who've already posted about having lupus or another. I have autoimmune thyroid disease, autoimmune diabetes (type 1 - insulin dependent), my mother and sister have other autoimmune diseases and just Monday (the day before the memorial, thanks Universe for that wonderful timing, good grief) I found out I've developed antibodies to my liver cells. Very scary. I could end up seeing MJ in a few short years after all, ahem. They think this could have been triggered in part by underlying lupus or rheumatoid arthritis. You know, because having 1 or 2 or 3 autoimmune diseases just isn't fun enough. Still waiting for further test results. God they suck. Poor Michael if he had to deal with this crap as well.

Oh and yes, anti-inflammatory drugs can help fight against lupus, but they themselves are not exactly benign and often don't push it into remission. Things like oral corticosteroids and similar are not something you want to be on long term.

P.S. To SeanK and Jacksonologist, I hope things turn out well for both of you.
 
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Re: Lupus!

But What ever it is, My Love for Michael Will NEVER Shake. He was human and what he suffered is so great that we cant even imagen it. I just feel so sorry that even after his passing, They still want to degrade him. I feel ashamed of all the people in the Media. They judge him with out Knowing ANYTHING Whats so ever about him.

I now know that he has suffered sooo much alone, His children was all he had. I thought I knew Michael, We all did. But there are things that we don't and what ever it is, when ever it comes out, its gonna make me love him more because He was real, he was one of us. He had connections with all of us.

You're a sweet-heart, and you keep things real. You said everything we're thinking and feeling. Thank you.
 
To seank and jacksonologist- :hug: to you both
We have u in our prayers
 
I don't know much about lupus, but I have vitiligo...and to people who say he must've bleached his skin on purpose they are wrong, because when you're under a lot of stress vitiligo spreads like crazyyy, from day to day you find new spots I had to learn how to deal with stress to stop it from spreading because sometimes not even treatment can guarantee anything
but for vitiligo you don't need too much treatment or anything when you're losing the fight with the disease...you're done
I'm thinking in Michael's case if he was undergoing any kind of treatment it was meant for lupus - but didn't he suffer from lupus discoid? I thought lupus discoid is only limited to the skin and it doesn't affect internal organs
oh another thing - on my hand I have spots just like Michael - if I get a tan it looks like I have a glove on, in all vitiligo patients it spreads following the same pattern just thought I'd mention it
 
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my mum has Lupus too. Horrible disease and my heart goes out to all of you who suffer with any health problem. I myself have Fibromyalgia and hypermobility and scollosis and take alot of meds so does my mum.
 
I watched Lee Thomas on youtube talking about vitiligo and showing what he has to do make-up wise before going on the tv. He showed his skin without make-up, and mentioned MJ.
 
There is a video on ABC website. Doctor talking about it in regards to MJ with Diane Sawyer and at the end she goes shows those things in a whole different light. Talks about Lupus and Vitiligo, the umbrella, glove, insomnia and fibromyalgia. My Mam and Aunt have fibromyalgia with their rheumatoid arthritis which is also an autoimmune disorder and can be very painful when you have a flare up.

Makes me sick that they now only see in his death.
 
I have rheumatoid arthritis, which I believe is in the same family of auto immune diseases and I can certainly understand if MJ was 'aching and tired,' as described in the lupus symptoms.

I was diagnosed in July last year, having originally gone to the doctor in January with mild aching hands and feet. By July I could not lift the duvet off myself in bed or lean on my elbows to pop painkillers out of their blisterpacks. It was terrifying.

On loads of drugs now and a year later I'm feeling much, much better. I really hope Michael wasn't suffering constant pain from lupus or other ailments - surely he would have had the best care?

To all of you on this thread with auto immune problems I'm so sorry you're suffering and I hope you don't let the stress of this MJ stuff get to you because I'm sure stress triggers flair ups.

I really hope that in time we get some answers so that Michael can rest in peace, without haters trying to ruin his reputation and without fans torturing themselves over what happened to him.
 
I've got an uncle and an aunt who got vitiligo.
My uncle mainly has it on his arms and hands, but it's not that bad because they're white.
I never doubted Michael had vitiligo, When I saw pictures and videos where it's not all covered up, I immediately recognized it.
In some pictures, it's not vitiligo that you see but that's just the lighting.
When you see this video, you just can't deny it!

Look at his right arm....
 
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